Imagine fighting against terrible diseases together
SocialGenomics is a smart social network with a matchmaker tool
to help you find your cure faster!
By connecting patients across the world who suffer from rare and undiagnosed diseases.
contact us: email@example.com
Where in the world is my cure?
Social Genomics empowers rare disease patients and their families to find their cure faster! Through offering rare disease patients, relatives, friends, medical specialists, academics, hospitals, life science researchers access to a highly secure and intelligent medical network.
A global solution, because maybe at the other side of the country, or the other side of the world, there will be people walking around with the same (ultra) rare disease.
Using smart technology we make your search journey easier and faster by connecting you to lifesaving information about your specific disease on a global scale.
The Story of Anne and Sophie
(( Two 7-year old girls are diagnosed with the same rare
brain tumor. Anne from Amsterdam and Sophie from Spain. Six months later
only Anne goes back to school. The difference? Anne's parents connected to a
US doctor working on an experimental medicine. Sophie's parents did not have
this 'connection'. The story shows the huge inequality of access to
lifesaving information. One connection can mean the difference between life
and death. At the same time their story shows the power of a single
connection to save a life. SocialGenomics is building a social network,
making lifesaving connections available for everyone.
To help you to find your cure faster!
We are developing a smart social network with a matchmaker tool to connect patients across
the world who suffer from rare and undiagnosed diseases.
A digital solution to transform the ME situation for patients (I am alone in the world) into WE (together stronger!)
- to feel less alone and collaborate to accelerate research.
If you know someone fighting against a terrible disease, connect. Maybe you can help them:
Founded with purpose
Listen to the founder story of Susanne Baars
Supported by global influencers, scientists and politicians
Former Prime Minister of the Netherlands
"Giving hope to people. Susanne Baars, a woman on a mission. Using her
expertise and knowledge about genetics to contribute to a more sustainable
and fair world with less disease suffering. I admire her drive,
perseverance and courage."
Prof. Dr. J.P. Balkenende
Head of Erasmus Medical Center Dept
"Social Genomics will bring Whole Genome Sequencing to the patient and
its family by providing open access data for participants of its patinet